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Rare AutoImmune SElf-management Programme Development

Recruitingn/aAges 18 Years - anyAllUniversity of the West of England
NCT06642870 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The rare autoimmune rheumatic diseases (RAIRDs) are life-long multi-system diseases that are life or organ threatening. RAIRDs can impair quality of life similar to chronic diseases such as heart failure. The aim of the study is to explore content and structure of a support programme for people with RAIRDs in focus groups and survey meetings.

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📋 Eligibility rules (as published)
Inclusion Criteria: 1. Diagnosis of a rare rheumatic condition made by hospital doctor or secondary care: including lupus, systemic vasculitis, myositis, Sjogren syndrome (participant self-report) 2. Ability to give informed consent (with translation support if needed) Exclusion Criteria: \-
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What it tests

  • Non-interventional study
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Where

1 site
University of the West of England/ Bristol Royal Infirmary
Bristol, United Kingdom
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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