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โ† Trials
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Utilisation of Health Services and Quality of Life in Patients With Atypical Parkinsonian Syndromes

Recruitingn/aAges 18 Years - anyAllUniversity Hospital Southampton NHS Foundation Trโ€ฆ
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In plain words

What the trial is, and whether it could suit you

The study will compare health care utilisation and quality of life for patients with progressive supranuclear palsy, corticobasal syndrome and multiple system atrophy in different parts of the region that our specialist clinic operates in with different services as well as in other regions with no specialist clinics. This study aims to investigate which aspects of the service are most beneficial for the patients and to determine the influence of support services and specialty clinics on patients and their carers.

Sign in to get the eligibility rules as simple questions to take to your doctor.

๐Ÿ“‹ Eligibility rules (as published)
Inclusion Criteria: Patients and their carers must: * Be aged 18 or over * Have capacity to consent at the beginning of their involvement * Have a diagnosis of a neurodegenerative disease which includes progressive supranuclear palsy, corticobasal syndrome and multiple system atrophy but may include other closely related diseases where the presentation is similar, such as Alzheimer's disease where they present with a corticobasal syndrome Exclusion Criteria: * Patients or carers not meeting the inclusion criteria * Patients with static deficits only who do not have a neurodegenerative syndrome. * Patients who the principal investigator feels are not suitable to take part due to co-morbidities or participation in other trials.
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What it tests

  • Not listed
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Where

1 site
Wessex Neurological Centre
Southampton, United Kingdom
๐Ÿค Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible โ€” always decide together with your own doctor.
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