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Video Inspired Discussions About Ethical Outcomes in Pediatrics

RecruitingNAAges any - anyAllMassachusetts General Hospital
NCT06786104 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The goal of this clinical trial is to learn if the VIDEO-PEDS intervention works to improve Goals of Care communication between clinicians and parents of children with cancer. The main questions it aims to answer are: Does the intervention improve Goals of Care documentation? Does it improve patient outcomes (including less invasive preferences for resuscitation and interventions, less hospital utilization, and more palliative care and hospice use)? Does it improve parent outcomes (including health satisfaction and feeling heard and understood per survey scores)?

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📋 Eligibility rules (as published)
Inclusion Criteria: Patient * Age 0-12 years * Diagnosed with any type or stage of cancer * Receiving cancer directed treatment Parent * Decision maker for the child. * Biological parent, step-parent, legal guardian (e.g., adoptive parent), or grandparent with medical consent authority. * Has a child meeting the child inclusion criteria listed above. * Able to communicate in English or Spanish (the languages of the video decision aids). Exclusion Criteria: Patient * Not receiving primary medical care from the cancer clinic (e.g., second-opinion consultations only) * Already referred to and fully consulted by the palliative care team * Prognosis of less than a 2-month life expectancy Parent * Visually impaired beyond 20/200 corrected and unable to view the video (note: hearing impaired is not an exclusion as the videos are closed captioned). * Psychological state not appropriate for GOC discussions, as determined by the primary oncologist per the opt-out. * Participants who do not speak English or Spanish
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What it tests

  • VIDEO-PEDS
  • VIDEO-PEDS pilot
  • Focus Group
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Where

4 sites
Children's of Alabama at Birmingham
Birmingham, United States
Children's Hospital of Atlanta
Atlanta, United States
Dana Farber Cancer Institute
Boston, United States
Dartmouth Hitchcock Medical Center
Lebanon, United States
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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