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Long-term Follow-up (LTFU) Study of Participants in Any iECURE Protocol Using an Investigational Product (IP)

Recruitingn/aAges 7 Months - 15 MonthsAlliECURE, Inc.
NCT06805695 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

This LTFU is being conducted to assess long-term safety and durability of response in participants dosed with IP in a parent protocol, and to collect longitudinal natural history in enrolled but not dosed participants who also participated in a parent protocol.

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📋 Eligibility rules (as published)
Inclusion Criteria: 1. Enrolled in an iECURE parent protocol and have either completed or discontinued that protocol 2. Participant parent(s)/LAR is willing and able to adhere to the protocol requirements. 3. Consent was obtained by the participants parent(s)/LAR (and participant assent, where applicable), prior to any study-related data being collected. Exclusion Criteria: 1\. Participants who enroll into an interventional drug or gene therapy clinical trial utilizing an IP other than the IP provided in the parent protocol will be excluded from this protocol.
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What it tests

  • No Intervention
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Where

3 sites
Children's Hospital of Colorado, Anshutz Medical Campus
Aurora, United States
Icahn School of Medicine at Mount Sinai
New York, United States
Great Ormond Street Hospital
London, United Kingdom
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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