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Improving Diagnostics and Care After First Seizure

Recruitingn/aAges any - anyAllHaukeland University Hospital
NCT06814665 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

A first epileptic seizure is a distressing experience, often leading to a complicated and discouraging journey before an epilepsy diagnosis is confirmed. Early diagnostics can help alleviate this uncertainty. It is important to note that seizure mimics and suspected epilepsy are more frequently encountered than an actual first diagnosis of epilepsy or an epileptic seizure. Conversely, delays in diagnosing epilepsy are also common. The current evidence base on first events that may be epileptic remains limited. First seizure clinics, which provide specialized care for these cases, are becoming more common globally, but none have yet been established in Norway. There is a pressing need to assess the prevalence of first-seizure-like events in Bergen and the surrounding areas, as well as to investigate the clinical trajectory before and after an epilepsy diagnosis. EEG is the cornerstone of

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📋 Eligibility rules (as published)
Inclusion Criteria: * The patient has experienced events with a substantial suspicion of being an epileptic seizure. One of: * The patient has experienced one or more first-in-life events with a substantial suspicion of being an epileptic seizure, including febrile seizures, and these episodes have previously not been evaluated by a neurologist or pediatrician OR * The patient has experienced the recurrence of events with a substantial suspicion of being an epileptic seizure, that have previously been evaluated by a neurologist or pediatrician to not be epileptic, and this merits a new evaluation. * OR: The patient does not fulfill the criteria above, but has been investigated for episodes or complaints, which after evaluation have been shown to be first-in-life epileptic seizures. OR -The patient has experienced the recurrence of events with a substantial suspicion of being an epileptic seizure, that have previously been evaluated by a neurologist or pediatrician to not be epileptic, and this merits a new evaluation. Exclusion Criteria: * Previous known clinical diagnosis of epilepsy given by a neurologist or pediatrician, and not subsequently retracted. * Person or caregivers able to give informed consent. * Adequate Norwegian language skills to be able to fill out questionnaires.
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What it tests

  • Not listed
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Where

1 site
Haukeland University Hospital
Bergen, Norway
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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