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โ† Trials
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Evaluating Dyspnea in Autoimmune Myasthenia Gravis "Why am I Short of Breath?"

Recruitingn/aAges 18 Years - anyAllInstitut de Myologie, France
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In plain words

What the trial is, and whether it could suit you

Individuals with MG (IwMG) experience shortness of breath that may be activity-related, occur at rest and even happen during sleep. Dyspnea is a complex, multidimensional and multifactorial symptom involving sensory perception, cognition and emotion. Identifying the cause(s) of dyspnea in MG may assist in finding therapeutic strategies, reducing discomfort, improving QoL and potentially limiting respiratory deterioration and incidence of MG crisis.

Sign in to get the eligibility rules as simple questions to take to your doctor.

๐Ÿ“‹ Eligibility rules (as published)
Inclusion Criteria: * Age โ‰ฅ18 * Confirmed diagnosis of autoimmune MG * Shortness of breath in daily life: score 1 or 2 on the respiration item on the MG- activities of daily living score * Signed consent form * Affiliated to or beneficiary of a social security scheme Exclusion Criteria: * Known Pregnancy * Known respiratory disorder (other than MG) * Recent (within past 4 weeks) respiratory infection * Current MG crisis or exacerbation (necessitating increase in MG medication \&/or hospital admission) * No dyspnea - score 0 or 3 on the respiration item on the MG- activities of daily living score * Severe cognitive impairment/guardianship
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What it tests

  • Not listed
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Where

1 site
Institute of Myology
Paris, France
๐Ÿค Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible โ€” always decide together with your own doctor.
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