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Living With Guillain-Barré Syndrome as Children.

Recruitingn/aAges 10 Years - 18 YearsAllUniversity Hospital, Toulouse
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In plain words

What the trial is, and whether it could suit you

The goal of this qualitative observational study is to explore the lived experience and psychological aftermath of children who were affected by Guillain-Barré Syndrome (GBS) two to five years earlier. GBS is a rare and acute neurological condition, and while motor recovery is generally good in children, residual symptoms such as fatigue, pain, anxiety, or depression may persist and impact quality of life. The main questions it aims to answer are: How do children experience and recall their illness and recovery after GBS? What psychological or contextual factors might contribute to emotional distress or depressive symptoms in the years following the disease? Participants will: Be children aged 10 or older who had GBS two to five years prior. Participate in a 45-60-minute semi-structured individual interview during a routine follow-up visit. Respond to a screening questionnaire for d

Sign in to get the eligibility rules as simple questions to take to your doctor.

📋 Eligibility rules (as published)
Inclusion Criteria: * Children or adolescents aged 10 years or older at the time of the interview * History of Guillain-Barré syndrome (GBS) diagnosed in childhood * Time since acute episode: between 2 and 5 years * Sufficient mastery of the French language to participate in a semi-structured interview * Consent of the participant and, for minors, parental consent Exclusion Criteria: * Presence of a neurological disease other than GBS that may interfere with participation or interpretation of data * Severe cognitive impairment preventing the child or adolescent from engaging in the interview
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What it tests

  • Not listed
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Where

2 sites
University Hospital of Montpellier
Montpellier, France
University Hospital Toulouse
Toulouse, France
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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