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โ† Trials
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Symptom Monitoring With Supported Feedback in Advanced Chronic Kidney Disease

RecruitingNAAges 18 Years - anyAllMassachusetts General Hospital
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In plain words

What the trial is, and whether it could suit you

Patient-reported outcome measures (PROMs) are validated tools to reliably measure outcomes highly prioritized by patients, such as health-related quality of life (HRQOL) and symptoms, but the current clinical impact of PROMs is limited by a lack of evidence-based methods to incorporate them into routine care. Symptoms, which are highly prevalent among persons living with chronic kidney disease (CKD), substantially contribute to the reduced HRQOL experienced by this patient population. HRQOL spans several domains of wellbeing affected by disease, including physical, mental, and social health, functionality, and symptoms. Both HRQOL and symptom burden are consistently identified by patients with CKD as top clinical and research priorities. These issues are particularly salient to individuals living with advanced CKD, who suffer significant symptom burden that is often underrecognized and u

Sign in to get the eligibility rules as simple questions to take to your doctor.

๐Ÿ“‹ Eligibility rules (as published)
Inclusion Criteria: * Adults (age โ‰ฅ 18 years) * Advanced CKD, defined as at least two measurements of creatinine-based or cystatin C-based eGFR โ‰ค 30 mL/min/1.73m2 separated by at least 90 days in the preceding 12 months * Able to provide consent to participate in the study * Able to read and write in English * Under the care of a nephrologist at a Mass General Brigham nephrology clinic Exclusion Criteria: * Terminal illness likely to lead to death within 6 months of participation * Patients receiving dialysis treatment at the time of enrollment or scheduled to start dialysis therapy in the next 4 weeks * Patients scheduled to receive a kidney transplant in the next 6 months * Patients having their initial clinic visit (i.e., new to the clinic) * Cognitive deficits that would preclude understanding of consent form and/or questionnaires
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What it tests

  • Electronic patient-reported outcome measure (ePROM) for symptom monitoring
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Where

1 site
Mass General Brigham
Boston, United States
๐Ÿค Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible โ€” always decide together with your own doctor.
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