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CuidAME: Longitudinal Data Collection From Patients With Spinal Muscular Atrophy in Spain

Recruitingn/aAges any - anyAllFundació Sant Joan de Déu
NCT07231549 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The goal of this observational study is to set up a longitudinal data collection study to perform a long-term follow-up of SMA patients in a real-world setting, and to standardise and homogenize the data collection process for SMA patient's data. Treated and untreated patients will be followed based on the routine clinical practice schedule.

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📋 Eligibility rules (as published)
Inclusion Criteria: * Genetically confirmed 5q SMA * Patient or caregivers written informed consent has been obtained (except for paediatric patients deceased). Exclusion Criteria: * Further types of SMA (non-5q SMA). * Patient without legal capacity who cannot understand the nature, significance, and consequences of the project.
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What it tests

  • Not listed
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Where

1 site
Hospital Sant Joan de Déu
Esplugues de Llobregat, Spain
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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