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Patient-partnered Research in Investigating Fear of Cancer Recurrence in Kidney Cancer

Recruitingn/aAges any - anyAllBrigitta Rasmussen Villumsen
NCT07234656 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The goal of this observational study is to gather real-world information about Fear of Cancer Recurrence (FCR) following surgery in patients with renal cell carcinoma (RCC) and their partners/spouses by 1) establishing a panel consisting of patients with or without partners/spouses to facilitate patient-partnered research. Furthermore, 2) Through discussions among panel members and researchers identification of the most pertinent topics related to FCR, as well as the optimal timing and methods for collecting that information in the follow-up care after surgery. Finally, to conduct a feasibility and pilot study to investigate the feasibility of the recommendations developed in 1) + 2) and assess FCR in patients with RCC following surgery and their partners/spouses. In phase 1 participants (panel members) will be asked to collaborate with researchers in the development of recommendations

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📋 Eligibility rules (as published)
Inclusion Criteria: Phase 1: * Single patients diagnosed with Renal Cell Carcinoma (RCC) or patients with RCC being in an intimate relationship with a partner/spouse * Partner/spouse to patients who fullfil the inclusion criteria * Patients have undergone surgery due to localized RCC (T1-T2-T3 tumor) * Time since surgery: 0-120 months * Danish speaking patients and partners/spouses. Must be able to speak, write and read Danish * Patients/partners/spouses able to and willing to attend online project meetings or in person at Gødstrup Hospital. Phase 2: * Single patients diagnosed with Renal Cell Carcinoma (RCC) or patients with RCC being in an intimate relationship with a partner/spouse * Partner/spouse to patients who fullfill the inclusion criteria * Patients who have undergone surgery due to localized RCC (T1-T2-T3 tumor) * Danish speaking patients and partners/spouses. Must be able to speak, write and read Danish * Able to receive digital communication from the hospital * Informed consent must be signed before answering Fear of Cancer Recurrence questions Exclusion Criteria: Both phases, both patients and partners/spouses: * Diagnosed with cognitive impairment * Untreated psychiatric disorders due to non-compliance Phase 2: • Patients and partners/spouses who were panelists in phase 1
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What it tests

  • Phase 1: Establishment of a patient-partner panel
  • Phase 2: Feasibility testing of FCR questions, mode of administration and timing for investigating Fear of Cancer Recurrence
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Where

3 sites
Aalborg University Hospital
Aalborg, Denmark
Aarhus University Hospital
Aarhus, Denmark
Gødstrup Hospital
Herning, Denmark
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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