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"Healthcare APPlication for Children and Young People With Neuromotor Disabilities": a Digital Tool to Promote Integrated Pediatric Rehabilitation Care for Children and Young People With Disabilities and Their Families: a Mixed-methods Usability-acceptability-impact Study (HAPPY)

Recruitingn/aAges 2 Years - 25 YearsAllUniversity Hospital, Brest
NCT07307950 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The goal of this observational multicentric mixed methods study is to evaluate if the digital application "Deneo Kid", co-designed in France with adolescents, families, rehabilitation providers and researchers, can improve the coordination and quality of rehabilitation care for children and young people with neuromotor disabilities. The main questions it aims to answer are whether the application is easy to use for children, their families, and rehabilitation professionals, is acceptable, whether it helps families and professionals provide more integrated, including more family-centered and coordinated care, and whether it affects communication, relationships, and time and costs related to care coordination. Rehabilitation providers, families and adolescents ≥ 16 years old will use the "Deneo Kid" secured application for 3 months to share information, track care goals, and communicate w

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📋 Eligibility rules (as published)
Inclusion Criteria for children: * Aged 2 to 25 years. * Presenting a neuromotor impairment (such as cerebral palsy, acquired brain injury, musculoskeletal disorders, rare diseases, congenital heart conditions,...) that results in limitations in participation, according to the International Classification of Functioning, Disability and Health (ICF, WHO 2007). * Receiving rehabilitation at least once per week from at least two professionals in different care settings (e.g., healthcare, integrated health and social care, and outpatient settings) with a focus on promoting autonomy and participation. Inclusion criteria for parents: * Being the parent or legal guardian of a child meeting the criteria above. * Having access to a computer, smartphone, or tablet. Inclusion criteria for rehabilitation professionals: * Working with children with disabilities in pediatric rehabilitation (including physicians, physiotherapists, occupational therapists, psychomotor therapists, psychologists, speech therapists, specialized educators, or adapted physical activity educators). * Practicing in healthcare, integrated health and social care, or outpatient/private practice settings. * having access to a computer, smartphone, or tablet. Exclusion Criteria: * Refusal to participate.
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What it tests

  • Not listed
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Where

1 site
Chu Brest
Brest, France
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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