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Survivors Journey+

RecruitingNAAges 15 Years - 25 YearsAllChildren's Hospital Medical Center, Cincinnati
NCT07321353 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The main goal of this pilot randomized controlled trial is to learn if an online program called "Survivors Journey" (SJ+) can help teens and young adults, ages 15-25, who are Pediatric Brain Tumor Survivors (PBTS), and their caregivers, manage everyday challenges better by using skills like problem-solving and coping skills. The main questions it aims to answer are: * Is the SJ+ program rated as feasible (\>50% enrollment rate and \>75% retention rate) and acceptable (\>80% satisfaction rate) by PBTS and their caregivers? * Does the SJ+ program have better outcomes in improving PBTS and caregiver wellbeing in comparison to an internet resource comparison (IRB) made for PBTS and their families? Participants will be randomized into two groups: one group will be given access to the online SJ+ program and receive weekly online coaching sessions, and the other group will be given access to a

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📋 Eligibility rules (as published)
Inclusion Criteria: * a diagnosis of a pediatric intracranial tumor * tumor-directed treatment completed \> 12 months ago (treatment included: surgery, radiation, or chemotherapy) * lives with parent/guardian(s) * language: English must be the primary spoken language in the home Exclusion Criteria: * history of tuberous sclerosis or neurofibromatosis * treatment \< 12 months ago and/or treatment did not include surgery, radiation, or chemotherapy * history of psychiatric hospitalization * resides outside of the family home * history of autism, reactive attachment disorder, psychosis, or other psychiatric diagnoses/conditions associated with significant risk of harm to self or others per caregiver * English is not the primary language spoken in the home
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What it tests

  • Survivor's Journey+
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Where

2 sites
Cincinnati Children's Hospital Medical Center
Cincinnati, United States
Nationwide Children's Hospital
Columbus, United States
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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