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Bowel Continence Across the Lifespan in People With Spina Bifida

Recruitingn/aAges 5 Years - anyAllDavid Chu
NCT07390318 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The goal of this observational study is to learn how different enema programs affect bowel control in children and adults with spina bifida. An enema program involves putting liquid into the large intestine (colon) to help someone poop. The main questions it aims to answer are: 1. How well do different enema programs prevent bowel accidents? 2. How do these enema programs affect independence, bowel symptoms, and quality of life? Researchers will compare two types of enema programs to see which works better and is easier for participants to manage. Participants starting a new enema program will answer online survey questions at 3 different timepoints over the course of 1 year.

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📋 Eligibility rules (as published)
Inclusion Criteria: * Minimum age 5 years old * Myelomeningocele diagnosis * Starting a retrograde or antegrade enema program (or switching from one enema program to the other) * English or Spanish speaking/literate Exclusion Criteria: \- Other types of spinal dysraphism (e.g., lipomyelomeningocele, fatty filum)
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What it tests

  • Retrograde Enema
  • Antegrade Enema
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Where

24 sites
University of Alabama at Birmingham
Birmingham, United States
Children's of Alabama
Birmingham, United States
Phoenix Children's Hospital
Phoenix, United States
Children's Hospital of Los Angeles
Los Angeles, United States
University of California San Francisco
San Francisco, United States
Children's Hospital of Colorado
Denver, United States
Children's National Hospital
Washington D.C., United States
Ann & Robert H. Lurie Children's Hospital of Chicago
Chicago, United States

…and 16 more on ClinicalTrials.gov.

🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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