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Longitudinal Ulnar Deficit (ULNEER)

Recruitingn/aAges 3 Years - 18 YearsAllHopitaux de Saint-Maurice
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In plain words

What the trial is, and whether it could suit you

The management of patients with longitudinal ulnar deficiency is a clinical challenge due to the rarity of this condition and the wide variety of its manifestations. In particular, there is no consensus in the literature on the indications for surgery. The aim of this research is to improve understanding and management of this malformation by analyzing existing data from patient medical follow-up. No new clinical evaluations or occupational therapy assessments will be performed specifically for this study. The analysis will be based on previous medical and paramedical data (consultation reports, imaging, occupational therapy assessments, etc.) in order to better describe the functional evolution of patients and identify the decision-making criteria that guide surgical management. Parents will also receive standardized questionnaires (PROMIS and ABILHAND-Kids-CP) to gather their perce

Sign in to get the eligibility rules as simple questions to take to your doctor.

📋 Eligibility rules (as published)
Inclusion Criteria: * Patients with unilateral or bilateral ulnar hand deformity, whether operated on or not * Follow-up at CEREFAM and/or Trousseau Hospital * Complete medical records containing previous assessments Exclusion Criteria: * Non-French-speaking patient * No preoperative or postoperative assessment
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What it tests

  • Not listed
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Where

1 site
Hôpitaux Paris Est Val-de-Marne - Centre de Référence des Malformations des Membres
Saint-Maurice, France
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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