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โ† Trials
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Quality of End-of-Life Care for Children With Cancer

Recruitingn/aAges 18 Years - anyAllChildren's Oncology Group
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In plain words

What the trial is, and whether it could suit you

This study examines the role of access to care, patient/family interactions with the healthcare system, and stress in explaining variations in quality of end-of-life care. The data collected from this study may help researchers develop a model for identifying patients at risk of low-quality end-of-life care as well as recommendations for potential future interventions.

Sign in to get the eligibility rules as simple questions to take to your doctor.

๐Ÿ“‹ Eligibility rules (as published)
Inclusion Criteria: * Index Child (COG Registered Patient): * Must be deceased * \< 18 years old at time of death * Diagnosed with any oncologic condition * History of enrollment on Stratum 1 of APEC14B1, Project:EveryChild * Note: history of treatment on a COG therapeutic trial is not required * Resided in the United States, including Puerto Rico, as evidenced by most recent address, at the time of death Bereaved Parent(s): * Must be a parent, legal guardian, or caregiver (biological or non-biological) of an eligible Index Child enrolled on APEC14B1 with current Consent to Future Contact (e.g., from the APEC14B1 Part B Consent) * Self-reported confirmation of familiarity with the care received by the Index Child in the last month of their life * Bereaved parent must understand English or Spanish (written and/or spoken) * Must be a parent/guardian/key contact from the Index Child's APEC14B1 Future Contact study record or must be referred by one of the APEC14B1 contacts * Bereaved parent must be \>= 18 years old at the time of ALTE24C1 study enrollment Regulatory Requirements: * Bereaved parent must provide verbal or implied informed consent * For all participants, all institutional, FDA, and NCI requirements for human studies must be met
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What it tests

  • Non-Interventional Study
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Where

28 sites
Children's Hospital of Alabama
Birmingham, United States
Arkansas Children's Hospital
Little Rock, United States
Kaiser Permanente-Oakland
Oakland, United States
Alfred I duPont Hospital for Children
Wilmington, United States
Golisano Children's Hospital of Southwest Florida
Fort Myers, United States
Memorial Regional Hospital/Joe DiMaggio Children's Hospital
Hollywood, United States
Nemours Children's Clinic-Jacksonville
Jacksonville, United States
Nemours Children's Hospital
Orlando, United States

โ€ฆand 20 more on ClinicalTrials.gov.

๐Ÿค Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible โ€” always decide together with your own doctor.
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