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Evaluation of the Pulmonary Fibrosis Learning and Self-management Programme (FILIP)

RecruitingNAAges 18 Years - anyAllInsel Gruppe AG, University Hospital Bern
NCT07457463 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The goal of this observational study is to evaluate the feasibility and acceptability of a newly developed digital education and self-management program for people with fibrotic interstitial lung diseases (FILD) during inpatient pulmonary rehabilitation and outpatient interstitial lung disease (ILD) care. The study also explores whether participation in the program is associated with changes in health-related outcomes. The main questions this study aims to answer are: * Is the digital education and self-management program acceptable, useful, and practical for patients with FILD? * Is it feasible to recruit and retain patients and to collect outcome data for a future larger effectiveness study? * Do patients who participate in the program show differences in health-related outcomes compared with patients treated before the program was implemented? Patients who consent to participate du

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📋 Eligibility rules (as published)
Inclusion criteria are: * Diagnosis of a FILD as major indication for pulmonary rehabilitation (for Berner Reha Zentrum only) * Enrolled in Idiopathic interstitial Pneumonia (IIP) cohort study (Nr. 246/15 / PB\_2016-01524) and agreed to further use of data for further research purpose (for Inselspital only) * Age ≥ 18 years * Written informed consent Exclusion criteria are: * Cognitive inability or insufficient knowledge of project language (German) to follow informed consent or study procedures * Sarcoidosis
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What it tests

  • Blended patient education and self-management programme
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Where

2 sites
Department for Pulmonary Medicine, Allergology and Clinical Immunology, Inselspital, Bern University Hospital, University of Bern, Bern, Switzerland
Bern, Switzerland
Center for Rehabilitation & Sports Medicine Inselspital and Berner Reha Zentrum, Bern University Hospital, University of Bern, Switzerland
Heiligenschwendi, Switzerland
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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