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Implementation of an Accessible Healthcare Model (ACHD STRONG): Comparing Nurse and Physician Lead Healthcare Transition Education in a RE-AIM Framework

RecruitingNAAges 12 Years - 26 YearsAllUniversity of Wisconsin, Madison
NCT07559253 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The study includes patients with congenital heart disease (CHD), as well as their support persons and their providers, who are preparing to make the transition from pediatric to adult care for their CHD. The purpose of this study is to improve the tools available to help find doctors as patients enter adulthood. 200 people with CHD and support people will be enrolled.

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📋 Eligibility rules (as published)
Inclusion Criteria (Patient Participants): * Diagnosed CHD patients between the ages of 12-26 will be eligible * Able to provide assent when seen by a pediatric or adult congenital cardiologist provider. * A subset of patients will self-identify as having a disability, and or, be identified with disabilities in their medical or educational records. * Participants to provide assent/consent and complete all study activities in English or Spanish * Participants under the age of 18 must have a legal guardian who is able to provide consent in English or Spanish. Exclusion Criteria: * Providers may decline participation of any patient at their clinical discretion
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What it tests

  • Accessible Care Model Visit
  • Recruitment Interviews
  • Participating Patient-Support Person Interviews
  • Participating Patient-Support Person Surveys
  • Participating Provider Interviews and surveys
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Where

1 site
University of Wisconsin
Madison, United States
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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