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Exercise Prescription in Children With Hypertrophic Cardiomyopathy

RecruitingNAAges 10 Years - 18 YearsAllAlder Hey Children's NHS Foundation Trust
NCT07595354 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

Hypertrophic Cardiomyopathy (HCM) is an inherited cardiac condition that affects the heart muscle of adults and children. Historically, doctors have been cautious about encouraging patients with HCM to exercise, as they were worried it could be unsafe due to the risk of heart problems or emergencies. But recent evidence shows that the risks of exercise for a patient with HCM are far lower than previously thought and exercise has many benefits for a child's general health and mental well-being and is an important part of their social development. One way to help children with HCM feel confident to exercise is with an individualised exercise 'prescription'. This is where a team of specialist doctors, nurses, and physiotherapists assess patients and advise them on how to exercise safely and effectively. They then provide an exercise plan or 'prescription' individualised to them. This stud

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📋 Eligibility rules (as published)
Inclusion Criteria: * Undergoing screening for HCM due to a family history or gene-positive * Aged 10 to 18 years (inclusive) * Known to the inherited cardiac conditions clinic at Alder Hey Children's Hospital * Normal cardiac function * Able to complete an exercise log weekly with support from carers * Child or carer able to participate in telephone follow-up Exclusion Criteria: * Moderate to severe co-morbidities, including neuromuscular and respiratory illness and conditions affecting mobility * Learning difficulties precluding exercise participation * Phenotype of HCM * History of exercise-induced arrhythmia and/or syncope * History of unexplained syncope * Patients with an implantable cardiac defibrillator (ICD) * Family History of sudden cardiac death in first-degree relative * Child or carer unable to comply with telephone follow-up
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What it tests

  • Exercise Prescription
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Where

1 site
Alder Hey Children's Hospital
Liverpool, United Kingdom
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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