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โ† Trials
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Adult Bladder and Quality of Life Evaluation in Spina Bifida

Recruitingn/aAges 13 Years - anyAllBlayne Welk
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In plain words

What the trial is, and whether it could suit you

Spina bifida (SB) is a birth defect that affects the spine, often causing paralysis in the legs and problems with bladder and bowel control. Managing these bladder issues is important, but different methods, like using a catheter or surgery, can impact a person's quality of life. This study looks at how different bladder management methods affect the quality of life for young people with SB. Researchers will ask people with SB to complete a survey about how they manage their bladder and how it impacts their daily lives. The main goal is to find out if certain bladder management methods are associated with a better quality of life. This information could help doctors make better treatment decisions and counsel young people living with SB.

Sign in to get the eligibility rules as simple questions to take to your doctor.

๐Ÿ“‹ Eligibility rules (as published)
Inclusion Criteria: 1. Diagnosis of SB 2. Age โ‰ฅ13 years of age 3. Able to effectively communicate in English or Spanish 4. Willing to provide informed consent for participation and answer a set of questionnaires Exclusion Criteria: 1. Reconstructive surgery or urinary diversion in the last 3 months 2. Hospital admission in the last 1 month 3. Inconsistent or newly changed (within the last month) method of bladder management
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What it tests

  • Not listed
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Where

1 site
St Joseph's Hospital
London, Canada
๐Ÿค Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible โ€” always decide together with your own doctor.
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