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PROSPECT Registry for Individuals at Risk for Genetic Prion Disease

Recruitingn/aAges 18 Years - anyAllBrian Appleby
NCT07732608 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

PROSPECT is a prospective observational registry and longitudinal natural history study of adults at risk for genetic prion disease.

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📋 Eligibility rules (as published)
Inclusion Criteria: * Age ≥18 years * At risk for genetic prion disease based on family history * Willing to comply with all study procedures including genetic testing and longitudinal follow-up * Resident in the United States * Sufficiently proficient in English to participate in all study procedures Exclusion Criteria: * Lacking capacity to independently consent at time of initial enrollment * Symptomatic of prion disease at time of initial enrollment * Inability to provide a backup contact
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What it tests

  • Not listed
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Where

1 site
University Hospitals Cleveland Medical Center
Cleveland, United States
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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