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Lived Experience Narratives in Dementia

RecruitingNAAges 18 Years - 99 YearsAllUniversity of Nottingham
NCT07757178 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The Lived Experience Narratives in Dementia (LEND) research programme involves five work packages (WP). WP1 explores how people living with dementia use narratives and how narratives can impact them. Findings will support the development of LEND theory. WP 2-3 focus on developing the digital Online LEND Intervention, assessing its usability and acceptability, and conducting a feasibility study within NHS memory assessment and community services. Activities across the first three WPs include interviews, focus groups, user-testing sessions, engagement evaluation interviews, and a two-arm randomised feasibility trial using a range of outcome measures. Findings from this stage will inform refinement of the intervention and determine the feasibility of progressing to a future randomised controlled trial (RCT) of the Online LEND Intervention. WP4 is the Online LEND Intervention two-arm RCT. WP

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📋 Eligibility rules (as published)
General Inclusion Criteria (apply across WP1-WP3) * Adults aged 18+. * Able to give informed consent and participate meaningfully in the required tasks. * Adequate communication ability in the required study language General Exclusion Criteria (apply across WP1-3) * Living in a hospital or healthcare institution at the time of the study. * Refusal or inability to provide informed consent, or lack of capacity to consent. * Inability to comprehend participant information or communicate meaningfully
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What it tests

  • Online LEND Intervention
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Where

2 sites
Mental Health & Clinical Neurosciences, Institute of Mental Health
Nottingham, United Kingdom
Nottinghamshire Healthcare NHS Foundation , Highbury Hospital
Nottingham, United Kingdom
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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