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โ† Trials
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AXIS MG Patient Registry

Recruitingn/aAges 18 Years - anyAllAutoimmune Neurology Alliance
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In plain words

What the trial is, and whether it could suit you

The goal of the AXIS Autoimmune Neurology Registry is to learn about the experiences of adults living with autoimmune neurological disorders, starting with myasthenia gravis (MG), over time. The main questions the registry aims to answer are: * How do symptoms, daily functioning, and quality of life change over time? * What treatments do participants use, and how are these treatments related to their symptoms and health? * What challenges do participants experience with treatment, including side effects, treatment burden, missed doses, and access to care? Participants will: * Join the registry and complete an enrollment survey (online or through a mobile app) * Complete a brief online survey about their MG approximately once a month * Provide information that can help confirm their MG diagnosis * Optionally, share their medical records with the research team This is an observational

Sign in to get the eligibility rules as simple questions to take to your doctor.

๐Ÿ“‹ Eligibility rules (as published)
Inclusion Criteria: * Physician-confirmed diagnosis of myasthenia gravis (MG) * Willing and legally able to provide consent * Lives in the United States Exclusion Criteria: * Unwilling or unable to provide consent or comprehend and complete questionnaires * Cognitively impaired adults/unable to comprehend or understand the consent or overall study information
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What it tests

  • Not listed
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Where

1 site
Alira Health - Virtual/Remote Site - Can Be Completed 100% Online - All US Residents Accepted
Framingham, United States
๐Ÿค Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible โ€” always decide together with your own doctor.
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