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The Appendix Cancer PMP Research Foundation Natural History Study/Patient Registry

Recruitingn/aAges any - anyAllAppendix Cancer Pseudomyxoma Peritonei Research F…
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In plain words

What the trial is, and whether it could suit you

ACPMP's first-ever patient-powered global patient registry/natural history study collects patient and caregiver information and data to fuel clinical trials and drive breakthroughs for appendix cancer and PMP. We've invested the time and resources to make our Registry regulatory grade. Our Registry operates under active, ongoing Institutional Review Board (IRB) oversight by independent ethicists. It is powered by NORD's IAMRARE®, an industry gold standard platform built to be consistent with FDA's best thinking on natural history studies.

Sign in to get the eligibility rules as simple questions to take to your doctor.

📋 Eligibility rules (as published)
Inclusion Criteria: * Diagnosis of appendix cancer. * Meets the study inclusion criteria for participation. * Participant or, when applicable, a legally authorized representative (LAR) is able to provide informed consent and enter information into the Registry. * A designated representative may provide retrospective information for an individual who died from appendix cancer, as permitted by the study protocol. Exclusion Criteria: * Individuals who do not meet the study inclusion criteria. * Individuals for whom required informed consent cannot be obtained.
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What it tests

  • Not listed
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Where

1 site
ACPMP
Springfield, United States
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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