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PERCE-MUCO: Perceptions and Expectations of People With Cystic Fibrosis Regarding a Change in Treatment

Recruitingn/aAges 18 Years - anyAllFondation Ildys
NCT07885410 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

PERCE-MUCO is a prospective, multicentre, mixed-methods observational study investigating the perceptions, expectations and treatment-change intentions of adults with cystic fibrosis who are currently treated with elexacaftor/tezacaftor/ivacaftor (ETI) or whose treatment has been medically discontinued. The study focuses on patients' stated willingness to switch from ETI to vanzacaftor/tezacaftor/deutivacaftor (VTD), and on the factors associated with this intention, including treatment satisfaction, knowledge and expectations regarding VTD, quality of life, treatment adherence, reported adverse effects, access-related concerns and desired support from an advanced practice nurse. The quantitative component uses a study-specific questionnaire and routine-care CFQ-R 14+ and Morisky-8 data. A qualitative component consists of semi-structured interviews at the Roscoff cystic fibrosis centre.

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📋 Eligibility rules (as published)
Inclusion Criteria: * Diagnosis of cystic fibrosis * Currently treated with ETI for at least 3 months, OR previously treated with ETI but treatment discontinued for medical reasons Exclusion Criteria: * Patient objects to the use of their data for this project\\n• * Currently receiving the new CFTR modulator VTD
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What it tests

  • Not listed
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Where

11 sites
CRCM Caen
Caen, France
CRCM Giens
Giens, France
CRCM Lille
Lille, France
CRCM Lyon
Lyon, France
CRCM Montpellier
Montpellier, France
CRCM Paris
Paris, France
CRCM Reims
Reims, France
CRCM Rennes adultes
Rennes, France

…and 3 more on ClinicalTrials.gov.

🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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