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Does Chronic Pain Change Over Time in Children With Duchenne Muscular Dystrophy?

Recruitingn/aAges 7 Years - 18 YearsMaleAntalya Training and Research Hospital
NCT07892196 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

1\. Brief Summary This prospective observational study aims to evaluate the 6-month longitudinal changes in chronic pain, pain characteristics, coping strategies, and functional performance in children and adolescents aged 7 to 18 years diagnosed with Duchenne Muscular Dystrophy (DMD), with a primary focus on comparing ambulatory and non-ambulatory disease stages. Pediatric DMD patients followed at the University of Health Sciences Antalya Training and Research Hospital Neuromuscular Diseases Center will undergo comprehensive evaluations at baseline (Month 0) and at 6 months follow-up (Month 6). Pain parameters will be evaluated using the Adolescent Pediatric Pain Tool (APPT) to assess pain intensity, body localization, and sensory/affective/evaluative/temporal qualities, and the Brief Pain Inventory (BPI) 7-item Pain Interference Scale to determine pain interference with daily activiti

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📋 Eligibility rules (as published)
Inclusion Criteria: * Genetically confirmed diagnosis of Duchenne Muscular Dystrophy (DMD) * Aged 7 to 18 years * Residing in Antalya, Turkey (geographical restriction applied to minimize patient travel burden and prevent loss to follow-up over the 6-month observation period) * Intact hearing and vision capability sufficient to complete test instructions and self-report forms * Voluntary willingness to participate, with signed informed consent from parents/legal guardians and informed assent from the child Exclusion Criteria: * Bedridden status (inability to sit or maintain basic seated posture) * History of tracheostomy * Severe intellectual disability that precludes understanding instructions * Severe speech or communication impairment preventing self-report assessments * Presence of co-existing psychiatric or neurodevelopmental conditions (e.g., autism spectrum disorder, attention deficit hyperactivity disorder \[ADHD\])
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What it tests

  • Routine Clinical Follow-up and Pain Assessment
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Where

1 site
University of Health Sciences Antalya Training and Research Hospital, Neuromuscular Diseases Center
Antalya, Turkey (Türkiye)
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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